Female x-ald carriers like myself, may have been told that she will probably not be affected by this.
The fact is that the symptoms may be pretty rough when it comes to affecting the
quality of life. All the clinical symptoms many women have, tells us how the future may be. Having met many affected female x-ald carriers and heard their stories, as well as the best doctors and clinical nutritionists in this field, there is no
question x-ald carriers do have a risk of getting quite severe symptoms.
Attending the ULF meeting in 2009 was an eyeopener. X-ALD carriers are not unaffected. What I had been told was clearly not excactly